I have been so touched by all your comments and prayers for Missy!!! As we all know Pray is a powerful thing given to us. The pneumonia Missy got just days after her procedure at UVA has taken it's toll....it's been 2 weeks of antibotics each one stronger than the last with nebulizer treatments as well. Today she goes back to Urgent Care, but she tells me she is feeling better..Praise the Lord for keeping her wrapped in HIS arms. So I'm here to thank each and everyone of you who have been so kind as to keep her close in prayer. (((hugs))) I"m so blessed to have such special friends...and to even have some come by that I don't even know...God Bless you all!!!
I have a prayer request for my youngest daughter, Melissa. Let me give you a little history (some already know about her) Missy was born with a very rare genetic muscle disease that they call, Multi-core myopathy since the team of drs who diagnosed her in 1977 didn't name it. Her actually condition is a loss of cross striations in the muscle fibrils. This means the heart as well as all other striated muscles...the early years were spent going back and forth to Children's in DC..spending weeks at a time when pneumonia hit. (that was once a month) in the beginning we realized she also had a condition where the jaw didn't grow, the mouth opening was very very small and her tongue was very thick making nursing impossible, and even taking a bottle too. I used an eyedropper for a time. Since there were only about 50 cases being following in the US that were similar there wasn't much known about it. It's been said to be under the umbrella of MDA...so they followed her for 18 long years. Ok that's about it...no prognosis has every been given because it's so rare. Missy is now 33 yrs old, had a procedure last week at UVA to find out if there was any growths down her throat causing the inability to swollow well. The results of the the scope were good however it didn't go so well with anestheisia. The two drs who took care of her decided not to use the gas they use to keep people under during a procedure, because Missy stands the chance of developing Mylignant Hyperthermia ( a fever so high it would bake the brain) They were very careful not to put her totally under to lessen the chance of her stopping to breath. Well she did so more invasive treatment was used...After it was over they advised us Missy needs to keep her medilert bracelet on and get a necklace as well. So you see if she were ever in an accident and an ENT needed to tube her they could actually kill her in the process...Ok enough of this...they reason I'm telling you all this is that several days after the visit to UVA Missy came down with Pneumonia...she's hasn't been hospitalized although they have do breathing treatments and she's on a good antibiotic, but we need prayer...Knowing full well there have been many miracles in our daughter's life we are praying for another...that she gets thru this illness and is able to get the 2 flu shots. For her with all her problems it would be very dangerous if she got that flu....so my friends please join me and my family in lifting Missy up to God in prayer...knowing full well that He's been with her all her life providing miracle after miracle to keep her alive, and for all that I give HIM all the praise and glory!!! thanks so much and if there's a need amongst you all please add it here so we can hold you up as well...we know there's perfect Power in Prayer!!! Blessings. Bevie